In this article “Cancer Won’t Wait” by Sean O’Keefe originally published in Alpharetta Lifestyle Magazine, we take a closer look at the Pediatric Brain Tumor Foundation and the necessary work they are doing.
Cancer Won’t Wait
Thirteen children and teens in the United States are diagnosed with brain tumors every day. More children die of brain tumors than any other form of cancer. The mission of the Pediatric Brain Tumor Foundation (PBTF) is to cure all childhood tumors, to care for all families along the journey, and to help survivors thrive.
PBTF is the world’s leading nonprofit dedicated to childhood brain tumor research. Since 1991, this non-profit has funded and partnered with organizations globally to fund more than $44 million in scientific discovery. Historically, the PBTF has had a special focus on research, but much has changed over the years to ensure that the mothers and fathers, siblings, and nuclear family members have all the resources that they need. Out-of-pocket expenses, such as housing, transportation and groceries add up, and professional counseling, long-term rehabilitation, and other services often are not covered by insurance and pose serious barriers to patient care.
The Pediatric Brain Tumor Foundation’s Butterfly Fund, born in Atlanta in 2005, is currently serving families in need in 14 states across the country with the largest support remaining here in the Southeast United States. Right here at home, Children’s Healthcare of Atlanta is receiving the greatest support from the Butterfly Fund and is touching the greatest number of families in need! In 2019 alone almost $150,000 in financial support was given to Georgia families and over the last 20 years well over $4.5 million has been given to help families focus on survival across our nation.
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